Since Abbi’s diagnosis we have always maintained an open and honest household. She has known that even though I try to keep our food low carb, even on the verge of keto, if there is anything she really wants all she has to do is ask for it. Everything has gone fairly smooth for the…
I think it was around the middle of May that Abbie came up to me and told me she wanted to go back on shots. She said she was tired of being on a pump and having to unplug for swimming and other activities. I was okay with this but I knew it was not the only reason why she was saying these things. I knew it was the anxiety over the infusion changes that had her willing to go back to shots. So, I went looking again at other options even though I would be happy to let her be MDI if that is what she really wanted.
In the beginning there wasn't a need for a 504 plan, but as time went on it was something that was just necessary to make sure we were protected, Abbie was protected and even the school was protected.
You know when Abbie was first diagnosed, I think I stated my husband and I knew absolutely nothing further than what the hospital told us, what the internet could briefly inform us, and what little I remember from health class about Type 1 Diabetes. Don’t get me wrong the internet is full of fantastic information…
Let me tell you something about T1D….
The moment you think you have everything under control, everything is tightly reined in, numbers are looking fantastic, something will change. Whether the air shifts in the atmosphere, the stars are no longer aligned, your 11-year-old starts puberty, or decides she wants to hoard her low snacks, just know always be prepared to change it somehow and don’t let it get you down when it happens, because it will happen.
We finally were able to see the real numbers, the ones we had been missing in between the finger pokes. The ones that showed me what food really did to her body and how her insulin reacted to it... this is when our world changed!
#Levelwithme is a T1D Podcast hosted by Eric Paslay and sponsored by Dexcom that Abbie and I had the opportunity to be a guest on!
There are so many decisions when it comes to staying MDI, going with a pump, and/or getting a CGM. Even with all the information, your insurance may give you so many roadblocks none of it may make a difference....
What works for one does not work for others and I think we learned that the hard way. Eating whatever Abbie wanted just did not work for her no matter how we tried...she felt miserable for all the extreme highs and hard crashes, but we also hated being scolded at the Endo's office. So what did we do?
Two weeks later we were in training learning all the things that had been lost in translation from my 30 minute crash course. We were also getting scolding for giving our daughter too much responsibility and too few carbs... overwhelmed and unappreciated were two terms that came to mind.